Unfortunately this headline is still a dream. But we could help make this dream come true if all of us with COPD sign up for the new COPD Patient Powered Research Registry.
We need more research to find a cure for COPD.
One way is to attract more scientists to study COPD. But we need more money to attract more scientists. In a nutshell, that’s why the COPD Foundation created a Patient Powered Research Registry.
What is the Patient Powered Research Registry? More important, how will it help those of us with COPD find a cure? To paraphrase Bill Clark, Senior Director with the COPD Foundation, its purpose is to establish a ready base of patients interested in clinical trials that will, in turn:
1. Speed up the development of new medications and therapies;
2. Speed up new research for a cure;
3. Encourage increased funding for research; and
4. Give patients a vehicle to express what research is important to them.
I’ve been a member of the Alpha-1 Research Registry since its inception. Today it has approximately 4500 members, an impressive number considering the size of the Alpha-1 community. More impressive, with this ready supply of Alphas, the Alpha-1 Foundation has raised and invested over $50 million to support research projects at 97 institutions in North America and abroad.
If the Alpha-1 community has been able to accomplish this, just think about what the COPD community would be able to accomplish. Those of us with Alpha-1 COPD represent less than 5% of persons with COPD in the United States. Instead of thousands, there are millions with COPD in the United States today. In fact, COPD is now our third largest cause of death.
So won’t you join me and sign up for the COPD Patient Powered Research Registry? It’s easy. All you have to do is call the COPD Information Line at 1-866-316-2673. Then ask your friends with COPD to sign up as well.
Working together we can make the COPD Patient Powered Research Registry the largest research registry in the world. Working together we can make my headline a reality!